I see this is gonna be a thing with these late posts. Better late than never I guess but that's what life is like with Scleroderma. Whenever I start to get my strength back, I try to fit in as much as I can into the day. I don't mean to but it's hard to stop when I get to do more than just lay in bed all day. It stinks that doing little things like walking to the bathroom or taking my fur babies outside to hangout or even just painting/drawing wears me out so much. I really wanted to write earlier today but I was just so drained and groggy. I slept most of the day and had barely enough energy to eat. Now at almost 1 a.m. I finally have just enough to get through this post. I'm trying my best to not think about this upcoming weekend. So many plans are gettingcancelled and now I feel like I'm losing my good days. Still I have to stay positive somehow. I just feel so numb sometimes, maybe its the meds or the pain or that I don't feel like myself at all anymore. For now all I can do is keep trusting God and be grateful for the good days even if they are few and for between.
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